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and hope of a life where dreams come true....."
 
  
 
  
  
  
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Butterfly Auction

DEBRA Ireland is auctioning 38 signed GAA jerseys for Butterfly Day!
Auction begins Saturday, July 4th at 5pm and will end on Friday, July 10th at 5pm so make sure you don’t miss out and place your bid early!

gaa 1 gaa 2 gaa 3

The highest bidder on the Dublin jersey will be presented with the signed jersey at a training session by the Dublin team!

Click here to view all 38 jerseys and for more information on how to place your bid.

Click here to make your bid

Robert O’Neill (RIP) 27th November 1980 – 25th June 2009

We are all very saddened by the passing of a great friend and colleague, Robert O’Neill (RIP).

Robert worked tirelessly to raise awareness of EB and DEBRA Ireland and was a member of our Board up until last year.  His passion for life was an inspiration to everyone he met and he achieved so much in his short but full life.

He will be greatly missed by all the team in DEBRA Ireland.

 

On the 8th of May 2009 Robert O Neill opened his home to over 120 people to hold a casino night in aid of DEBRA Ireland.

Bitten by the bug after returning from a trip to Las Vagas , Robert transformed his home with the help of friends, family and local business to host what can only be described as a hugely successful glamorous event. It consisted of a full casino, bar and catering , spot prizes, live auction and best dressed lady.

Along with the fantastic craic that was had on the night Robert gave a powerful speech reminding everyone of the futility of life and to never waste a minute of it.

The night was a major success and raised in excess of €5461.00

Butterfly Day

DEBRA Ireland’s first National Fundraising Day; Butterfly Day is happening next Friday, July 10th and we need your support. Please click here now if you would like to donate just €2 to DEBRA Ireland for Butterfly Day!!

This is Me - Touched by a Butterfly

This is Me - Touched by a Butterfly is an insightful documentary in which we meet Liz Scanlon, her husband Gary, and their 4-year-old daughter Claudia, who was born with the genetic skin condition Epidermolysis Bullosa (EB).

The documentary offers a unique insight into the lives of a very brave family who deal with EB on a daily basis. They demonstrated courage and determination, allowing the viewer to see that through adversity, the human spirit can rise above it. You can view a clip from the programme above. For more information on the documentary please contact the DEBRA Ireland office. Images courtesy of the producers Animo Television.

Women's Mini Marathon

Congratulations to all our ladies who participated in the Women’s Mini Marathon in the sizzling heat, click here.

DEBRA Ireland Podcast

Liz spoke to VHI.ie last year about Claudia, to listen to the interview, click here.

Volunteers Needed

We are planning a lot of activity in the next few months and we need your help.
Please click here

Irish Treks 2009

Explore the breathtaking beauty and unspoilt landscapes on the West Coast Trek 2009 in aid of DEBRA Ireland. The experience will allow teams and individuals to hike or run through hidden areas of Galway few know exist.

For more information on:

West Coast Trek please click here

Dublin Bus refund ticket appeal

DEBRA Ireland appeal for dublin bus refund tickets, for more information click here