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EB FAQ |
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Epidermolysis Bullosa -EB- is a distressing and painful genetic skin disorder causing skin layers and
body linings to separate and blister at the slightest touch. Children born with EB have skin that is as
fragile as the wings of a butterfly - and as easily damaged.
Just imagine ...
... imagine seeing your child in pain but not being able to give him the comfort of a cuddle for fear that your cuddle will cause more painful blisters to occur.
... imagine waking up every morning with new blisters caused just by turning over in bed.
... imagine tearing the skin in your throat when you swallow.
In its most severe form, EB can be fatal in childhood. EB is a rare condition affecting 1 in 18,000 newborn children in Ireland.
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EB is the name given to a group of genetic skin disorders which cause skin blistering. In its mildest
forms (generally EB Simplex), localised blistering causes significant distress particularly in the summer
time. For those sufferers with the more severe forms, (generally EB Dystrophic), the extensive external
scarring and internal blistering lead to general debilitation, deformity and disability.