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As EB is a rare condition, it is quite likely that many GPs will never come across it and even some dermatologists will see relatively few patients with the condition. To ensure that patients receive the best care, an EB specialist medical multi-disciplinary team has been developed. This ensures that patients will be treated by professionals with experience and up to date training and knowledge.

Caring for Children

The national multi disciplinary EB service developed at Our Lady’s Hospital for Sick Children, Crumlin, Dublin 12, cares for children from birth to adolescence. The service is led by Dr Rosemarie Watson, Consultant Dermatologist and is supported by other specialists and medical staff. The service is open to all children in the hospital and the community.

The EB liaison nurse is Sharon Keogh and she can be contacted at Our Lady’s hospital, Crumlin, under 01–4096073 or by email at Sharon.keogh@olhsc.ie

Sharon is currently on maternity leave, please contact Dearbhla O'Connor at the above number in her abscence.

Caring for Adults

The national EB Service for adults is based in St James Hospital, Dublin 8. The service is also led by Rosemarie Watson, Consultant Dermatologist and is supported by a multi disciplinary team of specialists. The service is open to all adults with EB. The liaison nurse provides care and support in the hospital and the community.

The EB Liaison Nurse is Katherine Sweeney and she can be contacted at St James's Hospital under 01-4163722 or 086-3801580, or by email at ksweeney@stjames.ie.

DEBRA Ireland provides part funding towards some salaries, expenses, some training costs and other items as required.